23andMe is committed to supporting genetic research by enabling access to data we have included in our publications. We provide access to full summary statistics through a Data Transfer Agreement that protects the privacy of our participants’ data.
If you are a non-profit institution, please submit your data request for review by completing the 23andMe Publication Dataset Access Request Form. The information you provide on this form will be used to generate a Statement of Work (SOW) that will allow 23andMe to transfer data to you for use in the research project you describe. The SOW and DTA will need to be signed by your institution and 23andMe before data can be shared.If you are collaborating with investigators at multiple institutions and those institutions must also receive copies of 23andMe summary statistics, please have a PI from each institution fill out the form to ensure all parties receive access to datasets within a similar timeframe.
If you can’t access the form, please read the FAQ “I can’t access the form. How do I submit my request?” for more information on how to submit your request.
If you are a commercial institution interested in receiving 23andMe summary statistics, please reach out directly to bd@23andMe.com to receive more information.
No, please check with your PI instead. For the sake of efficiency, we only communicate with the PI.
The Publication Dataset Access Request Form will require the following information:
Before we prepare and sign a Data Transfer Agreement with your institution, please download and complete the Publication Dataset Access Statement of Work Document according to the instructions below. Note that you should not sign the document at this stage, and there are some fields that you should not complete.
If you are collaborating with investigators at multiple institutions and those institutions must also receive copies of 23andMe summary statistics, please have a PI from each institution submit a dataset access request to ensure all parties receive access to datasets within a similar timeframe. Collaborators should only send the request via email if they cannot access the 23andMe Publication Dataset Access Request Form.
When you have completed the required fields in the form, please download the SOW as a PDF and send it to dataset-request@23andMe.com, with the subject line: [PI’s Last Name — Publication Dataset Access]. A member of our Research Team will respond to let you know when your form is approved.
23andMe Publication Dataset Access Statement of Work Document
| Field | Instructions |
| Statement of Work No. | Do not complete. 23andMe will provide numbering information. |
| Institution Name | Provide your Institution’s legal name |
| GWAS Data | List the datasets you would like to receive |
| Phenotypes of Interest | If a GWAS dataset listed above includes multiple phenotypes, please specify which phenotypes you would like to receive. |
| Reference for Requested GWAS Data | For each GWAS dataset, provide the full reference for the corresponding publication |
| Other | Do not complete. 23andMe will complete this section as needed. |
| Principal Investigator Information | Provide your name, title, and institution email address. We will not be able to transfer data to gmail or other personal email addresses. |
| Institution Designated Researchers | List researchers at your institution who will need access to the summary statistics. Please provide their institution email addresses. |
| Collaborators | If you are collaborating with researchers at other institutions who will need access to the summary statistics, provide their information here. You do NOT need to list collaborators who will be viewing analysis results or manuscripts containing 23andMe data, but who will not need access to the summary statistics results files. |
| Research Project Title | Provide a brief title for your research project |
| Non-technical Research Summary | Summarize the goals of your
research project for a general audience. This section of
your request may be made public on our
collaborations website.
|
| Research Project | Describe your research
project, including:
|
| Data Use Questions | Please indicate whether
23andMe data will be used:
|
| Plans for Publication | Describe your estimated timeline to publication, including information on your target journal if available. |
| Signatures | Do not sign the form at this stage. The Statement of Work form and a Data Transfer Agreement will be returned to you for signature after 23andMe’s review and approval. |
You can streamline the request process by coordinating legal document signatures. We recommend the following:
To facilitate these conversations, we created a one-page Publication Dataset Access Summary. Please feel free to download and share this document as necessary.
Once 23andMe has received a complete and correct request form, we can generate a template agreement and SOW within 10 business days. Once 23andMe receives the DTA and/or SOW signed by your institution, it takes approximately 4 weeks for 23andMe to review and sign these documents.
If more than 5 business days have passed since you completed the request form and a member of our team has not contacted you, you may follow up by emailing dataset-request@23andme.com.
If 4 weeks have passed since you or your institution contracts office has shared a partially signed DTA and/or SOW with us and we have not returned the fully signed version, you may follow up by emailing dataset-request@23andme.com.
If you have additional questions or concerns, please contact dataset-request@23andme.com with the subject line “Question about Publication Dataset Access”. A member of the research team will get back to you within 5 business days.
After reviewing your request, a member of the Research Team will use the information provided via the Publication Dataset Access Request Form to draft an SOW and DTA. Once ready for signature, the documents will be emailed to the email address provided in your request.
To access summary statistics, we require the PI and an institution signing official to sign a Data Transfer Agreement (DTA) and Statement of Work (SOW). After receiving your form response, 23andMe will send the PI these documents for partial execution. The DTA protects the privacy of our participants’ data, and the SOW outlines how you plan to use the summary statistics.
Yes! If you are collaborating with investigators at another institution who will need to access the summary statistics as part of this research project, please inform those investigators will need to fill out the Publication Dataset Access Request Form, sign an SOW, and sign a DTA with 23andMe.
Only individuals listed in your request form and who work at your institution may access the summary statistics.
We provide access to de-identified summary statistics from published 23andMe GWAS for use in your research through a data transfer agreement.
